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Jake is celebrating his tenth birthday.
That's a remarkable feat, because at birth he was
given only three years to live. Miriam Edelson is
his mother, a dedicated fighter for Jake and
families in similar situations.
Edelson poses some tough questions: How do
parents cope with a child who has special
needs? Are we failing, as a society, to care
for children with disabilities? Whatever
happened to the federal government's promise of a
"Children's Agenda"?
My Journey with Jake works on two
levels. It's a poignant memoir by a devoted mother,
and a hard-hitting, well-researched look at health
care for Canada's children.
Miriam Edelson, and the story of her son
Jake, have appeared across Canada in newspapers and
magazines, and on television and CBC Radio.
She works as a trade-union and disability-rights
activist.
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